OUR MISSION
ACSOR’s commitment to supporting glioblastoma patients and their families by promoting access to information, emotional support, and concrete actions for a dignified life in the face of illness
ACSOR Association is an initiative dedicated to supporting individuals affected by glioblastoma and other brain-related oncological conditions. We aim to provide reliable information, medically validated resources, and support for patients, caregivers, and medical professionals.
Through our projects, we strive to build a community where empathy, education, and solidarity are core values. Regardless of their stage, every patient deserves to be heard, understood, and guided with respect and professionalism.
Glioblastoma is a grade IV malignant brain tumor, known for its rapid growth and aggressive nature. It develops from glial cells and is the most common form of brain cancer in adults. It affects brain function and requires complex treatment.
Symptoms vary depending on the tumor’s location and may include persistent headaches, seizures, memory problems, speech difficulties, muscle weakness, or changes in behavior. They develop gradually and require neurological evaluation.
Diagnosis involves brain imaging (MRI or CT), followed by a biopsy or surgery for histological confirmation. Genetic testing can provide additional information about prognosis and treatment options.
Standard treatment includes surgery (if possible), radiation therapy, and chemotherapy with temozolomide. In some cases, new therapies or clinical trials may be considered. The goal is to extend life and preserve its quality.
Currently, glioblastoma cannot be fully cured. However, treatments can slow disease progression, reduce symptoms, and significantly extend survival in some cases.
Recurrence occurs when the tumor returns after treatment. Re-surgery, alternative chemotherapy, or clinical trials may be considered. The decision depends on the patient’s condition and available options.
Average survival is between 12 and 18 months, but it varies based on age, overall health, response to treatment, and genetic factors. Some patients live significantly longer with proper treatment.
Yes, depending on the area of the brain affected, it can cause memory problems, speech difficulties, attention issues, or behavioral changes. These may be caused by the tumor or by the treatment itself.
The family provides emotional support, helps with decision-making, and manages daily treatment. Caregivers also need support to cope with the situation effectively.
Yes, patients and families can receive support from associations or peer groups. These offer information, counseling, and assistance in dealing with the challenges of the disease.
